- Acute Respiratory Distress Syndrome
- Interviews
A Acute Respiratory Distress Syndrome interview
How did all start?
My ARDS crisis started with just a simple cough on March 5, 2016. It quickly progressed throughout the day, and by the next morning, I felt as if I had the flu. I went to an outpatient ER where I was diagnosed with possible bronchitis. All other tests were negative.
Do you already have a diagnosis? How long did it take you to get it?
Yes. It started with a simple cough. Ten days later, I was in the ER with a positive ARDS diagnosis.
For what medical specialties have you been treated? What has been the most useful specialty for your?
I was on a ventilator in ICU for 13 days. I spent another week in the hospital after I was extubated. Actually, I self-extubated. I was transferred to a rehabilitation hospital where I spent 8 days.
What has been the most useful thing for you so far?
The rehab hospital was definitely the most useful thing.
What have been your biggest difficulties?
The most difficult thing has been PTSD and memory loss.
How has your social and family environment reacted? Have your social or family relationships changed?
Everyone was naturally very concerned during my health crisis. Prayer chains spread across the country. Friends brought food, sent cards and gifts, and checked in daily. I have noticed a change in my family. We are much closer.
What things have you stopped doing?
I have difficulty grocery shopping and making big decisions. I get a "brain overload". The dynamics of my relationship with "the girls" has changed. I can't keep up with them (social activities). Sometimes, I think they don't understand I am still having issues.
What do you think about the future?
I am taking one day at a time. I feel most fortunate to have survived. God has given me a second chance and I won't take anything for granted. I want to help others who are dealing with this awful illness.
So far, which years have been the best years in your life? What have you done during them?
The mid 80s when my kids were young were my best years. I was fortunate enough to be a stay at home mom. I treasure every moment of raising my boys.
What would you like to do if you didn’t have your condition?
Be more active in the community and in social groups.
If you had to describe your life in a sentence, what would it be?
I have had a blessed life despite my ARDS.
Finally, what advice would you give to a person in a similar situation?
I advice anyone in this situation to get rehabilitation, counseling and to join a support group.
