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Story about Bardet-Biedl Syndrome .

Hello!

Jan 27, 2016

By: Tamara en Bas Brinkman (30 augustus 2000, male)

Bardet-Biedl Syndrome
Hello, my name is Bea. Maried with my great and loving husband, Marco. Together we have  three children. Tamara, Bart and Bas. Bart en Bas are twins. Tamara en Bas have BBS. It was great to see this map with all this people with BBS! I could show Tamara and Bas they're not alone!!

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