- Charcot-Marie-Tooth Disease
- Interviews
Robin Davis's interview
How did all start?
With high arches when I was a baby.
Do you already have a diagnosis? How long did it take you to get it?
Yes. It took maybe a month or two
For what medical specialties have you been treated? What has been the most useful specialty for your?
Neurologist and I wore afos
What has been the most useful thing for you so far?
Doing a little bit every day. It may not be much but I'm not giving up. I may walk some i have help doing things around the house.
What have been your biggest difficulties?
Losing the strength in my hands. I can't do as much with my hands.
How has your social and family environment reacted? Have your social or family relationships changed?
I really dont have a social life.i had to working
What things have you stopped doing?
I had to stop working.
What do you think about the future?
Its going to btough but I'm not giving up.
So far, which years have been the best years in your life? What have you done during them?
4and 10. I really didn't acknowledge this disease.
What would you like to do if you didn’t have your condition?
I would love to be able to run. I've never been able to do it.
If you had to describe your life in a sentence, what would it be?
My life has been limited but I try to live it to the fullest.
Finally, what advice would you give to a person in a similar situation?
Never give up. If you give up this disease wins.
