- Charcot-Marie-Tooth Disease
- Interviews
fallowfield's interview
How did all start?
Could not skate/ski when a teenager. Fiagnosed in 1992.
Do you already have a diagnosis? How long did it take you to get it?
Born with it but symptons started to appear as a teenager.
What have been your biggest difficulties?
Strength and balance. Endursnce in physical activity dramatically going down hill.
How has your social and family environment reacted? Have your social or family relationships changed?
No
What things have you stopped doing?
Cannot walk more then a couple of hours - just two yeats ago I vould wall all day. No strength to pedal a bike anymore.
What do you think about the future?
I think my ability to walk without any assistance will disappear.
So far, which years have been the best years in your life? What have you done during them?
Working up until my retirement 3 years sgo.
What would you like to do if you didn’t have your condition?
Ski.
If you had to describe your life in a sentence, what would it be?
Ups and downs but never give up. Will accomplish anything I attempt albeit it takes much longer.
Finally, what advice would you give to a person in a similar situation?
Do not dwell on the disease but go on with your life.
