Question - Congenital Adrenal Hyperplasia (CAH)
Doctors working with Adults affected with CAH
My son was born with CAH. He is 45 years old. After he turned 18 years old, the Great Team of Doctors said good by and asked that we find a Physician familiar with CAH.
We are still looking for one! My son has been treated by a doctor that does not seem to have much interest in the case but He is part of the Insurance plan, and my son does not want to change doctors. I am surprised that my son has survived all these years with the poor care he has received. He has a low self estime and is overweight, that worries me. We have attended a few CAH Conferences throughout the years but no doctor sees adults with CAH...only children up to 18 years old.
Where?, How can we find a Doctor for him? We live in Texas.
A mother in distress in Texas
Have you tried CARES? https://www.caresfoundation.org/physician-referrals/
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