A Guillain-Barre Syndrome story
Dec 2, 2
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I believe my GBS started because of my gastric bypass surgery on 8/29/13. I started symptoms in the second week of October. My thoughts were fuzzy but on 10/23 I had a migraine. It lasted 3 days but I went back to work. I tried to login to my computer but I couldn't remember any information. I couldn't even remember how I got to work. I went home and by the time my husband arrived my leg were rubbery. He took me to the ER Because I was getting shooting pain down both legs but they didn't take tests and gave me a pain blocker then sent me home. That night I started using crutches to keep me on my feet. I couldn't walk without them. My husband, through a lot of pushing and begging, finally got me to agree to try a different hospital (thank God!). The amazing thing is that hospital L&M in New London, CT knew my symptoms and scted quickly. I am convinced if they sent me home I would be dead. Within hours I was in ICU and paralyzed from my nose to my toes. I spent a month in the hospital and have since been diagnosed with PTSD which I didn't even know was possible. I start to overthink ever pain, ache, numbness, flu to the point of worrying that my GBS is returning. We are moving soon to a warmer climate because I have found cold weather causes me more pain and limits my exercise. There are so few of us we have to fight together
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