A Hereditary Spastic Paraplegia interview .

Ivan's interview


How did all start?

Clumsy tripping and others noticed a limp.

Do you already have a diagnosis? How long did it take you to get it?

Yes many test over a year

What has been the most useful thing for you so far?

My ♿

What have been your biggest difficulties?

Playing with my children as they grew up finding things more difficult as years went on

What things have you stopped doing?

Cycling walking, running most sports

What do you think about the future?

Today is the only day!

What would you like to do if you didn’t have your condition?

Walking holidays abroad

If you had to describe your life in a sentence, what would it be?

Hard work

Finally, what advice would you give to a person in a similar situation?

Live for today


Oct 27, 2017

By: Ivan

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