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How do I know if I have Idiopathic Angioedema?

What signs or symptoms may make you suspect you may have Idiopathic Angioedema. People who have experience in Idiopathic Angioedema offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Idiopathic Angioedema?

How to Determine if You Have Idiopathic Angioedema


Idiopathic angioedema is a condition characterized by sudden swelling beneath the skin, often around the face, lips, tongue, throat, or genitals. It is considered idiopathic because the exact cause is unknown. If you experience recurrent episodes of unexplained swelling, it is important to consult a healthcare professional for a proper diagnosis. Here are some key factors to consider:



Symptoms:


1. Sudden Swelling: Idiopathic angioedema typically presents as sudden swelling that can last for hours or even days. The swelling may be painless but can cause discomfort or difficulty in breathing, swallowing, or speaking.


2. Location of Swelling: The swelling commonly affects areas such as the face, lips, tongue, throat, or genitals. However, it can also occur in other parts of the body.


3. Recurrence: Idiopathic angioedema episodes tend to recur intermittently without an identifiable trigger. The frequency and severity of episodes can vary from person to person.



Medical Evaluation:


If you suspect you may have idiopathic angioedema, it is crucial to seek medical evaluation for an accurate diagnosis. Here's what you can expect:



1. Physical Examination: A healthcare professional will examine the affected areas and assess the severity of the swelling. They may also inquire about your medical history and any family history of similar symptoms.


2. Allergy Testing: Allergy tests may be conducted to rule out any potential triggers that could be causing the angioedema. This can involve skin prick tests or blood tests to check for specific allergens.


3. Blood Tests: Blood tests may be performed to evaluate various factors, including immune system function, inflammation markers, and levels of specific proteins or enzymes.


4. Elimination Diet: In some cases, your doctor may recommend an elimination diet to identify any potential food triggers that could be contributing to the angioedema episodes.



Consulting a Specialist:


If the initial evaluation does not provide a definitive diagnosis, your healthcare provider may refer you to a specialist, such as an allergist, immunologist, or dermatologist. These specialists have expertise in diagnosing and managing conditions like idiopathic angioedema.



Note: It is important to remember that this response is for informational purposes only and should not replace professional medical advice. If you suspect you have idiopathic angioedema or any other medical condition, please consult a qualified healthcare professional for an accurate diagnosis and appropriate treatment.


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I had my first occurrence of anaphylaxis in December of 2013. I was diagnosed with Idiopathic Angioedema in March of 2014. 

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