Our Daughter
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My daughter developed NEC 1 day old after a bad pregnancy and delivery. She was 5 weeks early.
Her body tried to hide it so it was undiagnosed for nearly 4 weeks. She had 3 major surgeries resulting in aromas. Then when closed she was left with a gastrostomy. After 8 months she was allowed home. She had holes in her heart. One has closed, the other is almost closed. She's had issues with her kidneys too but they are pretty much as they should be.
She also failed Her early hearing tests and recently at 2 years old had a cochlear implant. Hearing aids didn't work.
Activation is 23rd October.
This is us in a nutshell.
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