22

Optic Nerve Hypoplasia prognosis

What is the prognosis if you have Optic Nerve Hypoplasia? Quality of life, limitations and expectatios of someone with Optic Nerve Hypoplasia.

Optic Nerve Hypoplasia prognosis
1 answer
The prognosis for SOD/ONH patients depends on the severity of their particular experience with the disease. Some patients may have all the symptoms and others may only have some. If, say, someone was only blind in only one eye, had pituitary issues caused by this disease, but did not have midline disturbances in the brain. They would have two of the main symptoms of SOD/ONH and so their prognosis is good-ok depending on their lifestyle. If someone, though, where to be effected in both eyes, also have pituitary dysfunction, and also disruptions to the corpus callosum, the prognosis would be much worse as they would be placed on the autism spectrum, would be entirely blind, and seriously ill, severely impacting their life. Another factor with SOD is that driving may not be possible and thorough tests conducted by an Optometrist are necessary before getting a license as, in my experience, driving instructors and the MVD (United States) required eye exam results before allowing me to drive and get my license. So, again, depending on how SOD/ONH effects you, there are many issues one can and will face with this disease as it is a chronic condition.

Posted Dec 7, 2018 by Ty 4960

Optic Nerve Hypoplasia prognosis

Optic Nerve Hypoplasia life expectancy

What is the life expectancy of someone with Optic Nerve Hypoplasia?

2 answers
Celebrities with Optic Nerve Hypoplasia

Celebrities with Optic Nerve Hypoplasia

2 answers
Is Optic Nerve Hypoplasia hereditary?

Is Optic Nerve Hypoplasia hereditary?

2 answers
Is Optic Nerve Hypoplasia contagious?

Is Optic Nerve Hypoplasia contagious?

2 answers
Natural treatment of Optic Nerve Hypoplasia

Is there any natural treatment for Optic Nerve Hypoplasia?

ICD9 and ICD10 codes of Optic Nerve Hypoplasia

ICD10 code of Optic Nerve Hypoplasia and ICD9 code

2 answers
Living with Optic Nerve Hypoplasia

Living with Optic Nerve Hypoplasia. How to live with Optic Nerve Hypoplasia...

1 answer
Optic Nerve Hypoplasia diet

Optic Nerve Hypoplasia diet. Is there a diet which improves the quality of ...

1 answer

World map of Optic Nerve Hypoplasia

Find people with Optic Nerve Hypoplasia through the map. Connect with them and share experiences. Join the Optic Nerve Hypoplasia community.

Stories of Optic Nerve Hypoplasia

OPTIC NERVE HYPOPLASIA STORIES
Optic Nerve Hypoplasia stories
My daughter was diagnosed at 2 1/2 months old with ONH. She was born February 20, 2016 so this is still fairly new to us. No other diagnosis as of yet and hormone function has been normal to date. She has light perception, seems to see colours and wi...

Tell your story and help others

Tell my story

Optic Nerve Hypoplasia forum

OPTIC NERVE HYPOPLASIA FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map