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Paramyotonia congenita

Dec 2, 2017

By: mimi

Year Condition Began: 1972

Paramyotonia congenita
This condition has been passed from my grandad, his 3 children, my brother, his 2 children and my 2 children and me. We have been to doctors, but none of them helped. We all cannot be too long in cold water, cold weather conditions and get stiff muscles when we pick up heavy objects. We are affected in the eye, mouth, legs and especially hands.
I wish someone, someday finds a cure for this condition.
Thank you

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