- Relapsing Polychondritis
- Interviews
Cindy's interview
How did all start?
My ears
Do you already have a diagnosis? How long did it take you to get it?
I have been diagnosed, it took 10 years after my ear surgery.
For what medical specialties have you been treated? What has been the most useful specialty for your?
ENT, rheumatologist, neurosurgeon, orthopedic surgeon
What has been the most useful thing for you so far?
None
What have been your biggest difficulties?
None
How has your social and family environment reacted? Have your social or family relationships changed?
I just slowed down and gave up the things I enjoy
What things have you stopped doing?
Horse back riding, training horses, CrossFit and the gym
What do you think about the future?
I was told that I can not do the things I used to do and I am adjusting
So far, which years have been the best years in your life? What have you done during them?
From my 20 to 50’s, trained horses, raised my kids and body builded
What would you like to do if you didn’t have your condition?
Keep riding horses and CrossFit, I am only 52 years old
If you had to describe your life in a sentence, what would it be?
I have a good life, just wish I could still ride horses and workout
Finally, what advice would you give to a person in a similar situation?
Enjoy your life and be thankful
