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What is the prevalence of Sarcoidosis?

How many people does Sarcoidosis affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Sarcoidosis

Sarcoidosis is a relatively rare disease, affecting people worldwide. The prevalence of sarcoidosis varies across different populations and regions. In the United States, it is estimated that around 10 to 40 cases per 100,000 people are diagnosed with sarcoidosis each year. However, the true prevalence may be higher as many cases go undiagnosed. Sarcoidosis predominantly affects adults between the ages of 20 and 40, with a slightly higher incidence in women than men. It is important to consult a healthcare professional for accurate diagnosis and management of this condition.



Sarcoidosis is a relatively rare disease, but its prevalence varies across different populations and regions. It is estimated that approximately 10 to 40 cases per 100,000 people are diagnosed with sarcoidosis each year. However, it is important to note that these numbers may not accurately reflect the true prevalence, as many cases go undiagnosed or misdiagnosed due to the disease's diverse symptoms and lack of specific diagnostic tests.

Sarcoidosis can affect individuals of any age, gender, or ethnicity, but it is more commonly diagnosed in adults between the ages of 20 and 40. The disease also exhibits geographical variations, with higher prevalence reported in certain regions such as Scandinavia, Northern Europe, and parts of the United States.

While sarcoidosis is not considered a common condition, its impact on individuals can be significant. The disease primarily affects the lungs, but it can also involve other organs such as the skin, eyes, heart, and nervous system. Early diagnosis and appropriate treatment are crucial in managing the symptoms and preventing long-term complications associated with sarcoidosis.
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11 answers
From what I understand this disease is a common disease. More common than you would think. But until you are diagnosed with it, you probably have never heard of it.

Posted Sep 7, 2017 by Kristie 2000
Sarcoidosis affects everyone. It mostly reared its ugly head when someone is in their 40s but it can't affect children teenagers young adults and elderly at different stages of their lives. It mostly reared its ugly head after an illness.

Posted Sep 11, 2017 by XTIENNA 2000
Sarcoidosis is a worldwide disease but has a higher prevalence in coloured races. The number of people being diagnosed has risen in recent years and the percentage per 1000 people has increased. It affects more people in the 40-60 age group although the overall numbers in each age group have risen. It is widerspread in Adults than in children.

Posted Oct 26, 2017 by Diane 2735
Sarcoidosis affects people of all ages throughout the world, with the highest incidence in those between the ages of 20 and 40 (1). ... With 36 cases per 100,000 people per year, African Americans are about 3 times more likely than Caucasian Americans (11 cases per 100,000) to have sarcoidosis.

Posted Oct 27, 2017 by KindredSpirit 2050
Sarcoidosis occurs throughout the world in all races with an average incidence of 16.5 per 100,000 in men and 19 per 100,000 in women. The disease is most common in Northern European countries and the highest annual incidence of 60 per 100,000 is found in Sweden and Iceland. In the United Kingdom the prevalence is 16 in 100,000

Posted Oct 27, 2017 by Wendy 2000
Sarcoid can hit both men and women of all ages and all colours
In children this illness is very rare

Posted Oct 27, 2017 by Stewart 2000
Sarcoid affects more women than men, and affects mostly between the ages of 25 and 50. But it can affect men or women young or old and of all Races and demographics. It is very rare in Pediatric cases but it can occur. It can also occur after the age of 50 but it is also rare.

Posted Jul 4, 2018 by msinky 2550
I think it affects more women. I havent heard of any children

Posted Oct 8, 2019 by Lashawn 2500
African and Scandinavian descent are more at risk.

Posted Jan 18, 2021 by Althea 4550
When I was first diagnosed with Sarcoidosis it was believes to affect the African American culture more than any other race. Then expanded to other races with women being diagnosed at a higher rate than men.

Posted Sep 14, 2023 by Emma Johnson 2500

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Sarcoidosis forum

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#Teamandreafight will be hosting a sarcoidosis awareness Day. April 30,2016. Games. Raffles. Guest speakers. Holistic remedies. We're even selling inflammation reducing lemonade! Bake sale and more. JOIN US!! Survivors please visit our facebook page ...
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I am looking for other with Neurosarcoidosis, my Dr.s have all told me its a rare type of Sarcoidosis and my also being a white male Im very more a rare bird, are there any others, I am also open to talk to anyone

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