- Syringomyelia
- Interviews
Lucille's interview
How did all start?
Pain and numbness in leg
Do you already have a diagnosis? How long did it take you to get it?
Yes, Pain for forever, diagnosed in Feb 2018
For what medical specialties have you been treated? What has been the most useful specialty for your?
None
What has been the most useful thing for you so far?
None
What have been your biggest difficulties?
Don't know what the future holds.
How has your social and family environment reacted? Have your social or family relationships changed?
Very good support
What do you think about the future?
Scared
What would you like to do if you didn’t have your condition?
Just live my life with no worries
If you had to describe your life in a sentence, what would it be?
Great
Finally, what advice would you give to a person in a similar situation?
Get disability insurance while you are still healthy.
