Is it advisable to do exercise when affected by Dysplasia Epiphysealis Hemimelica / Trevor Disease? Which activities would you suggest and how intense should they be?

Exercise Recommendations for Dysplasia Epiphysealis Hemimelica / Trevor Disease

Dysplasia Epiphysealis Hemimelica (DEH), also known as Trevor Disease, is a rare developmental disorder that affects the growth plates in the bones. It primarily affects children and adolescents, causing abnormal bone growth and joint deformities. If you or someone you know is affected by DEH, it is important to consider the impact of exercise on the condition.

Consult with a Healthcare Professional: Before starting any exercise program, it is crucial to consult with a healthcare professional who is familiar with DEH. They can provide personalized advice based on the individual's specific condition and limitations.

Low-Impact Activities: Engaging in low-impact activities can be beneficial for individuals with DEH. These activities put less stress on the joints and bones, reducing the risk of injury and discomfort. Some suitable options include:

• Swimming: Swimming is a great low-impact exercise that provides cardiovascular benefits without putting excessive strain on the joints. It also helps improve flexibility and muscle strength.


• Cycling: Riding a bicycle, either outdoors or on a stationary bike, is another low-impact activity that can be beneficial. It helps improve cardiovascular fitness and strengthens the leg muscles.


• Yoga: Practicing gentle yoga poses can help improve flexibility, balance, and joint mobility. It is essential to choose poses that do not put excessive pressure on the affected joints.

Range of Motion Exercises: Range of motion exercises can help maintain joint flexibility and prevent stiffness. These exercises involve moving the affected joints through their full range of motion without causing pain or discomfort. A physical therapist can provide guidance on specific exercises that are safe and effective for DEH.

Intensity and Duration: The intensity and duration of exercise should be determined on an individual basis, considering the severity of DEH and any associated symptoms. It is important to start slowly and gradually increase the intensity and duration of exercise over time. Listening to the body and avoiding activities that cause pain or discomfort is crucial.

Monitoring and Adjustments: Regular monitoring of the condition is essential when engaging in exercise with DEH. If any new symptoms or increased pain occur during or after exercise, it is important to consult with a healthcare professional. They can assess the situation and make necessary adjustments to the exercise program.

Conclusion: While exercise can be beneficial for individuals with Dysplasia Epiphysealis Hemimelica / Trevor Disease, it is crucial to approach it with caution and seek professional guidance. Low-impact activities, range of motion exercises, and personalized recommendations from healthcare professionals can help individuals with DEH maintain joint mobility, improve overall fitness, and enhance their quality of life.