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Story about Wiedemann-Steiner Syndrome .

Our daughter

Mar 31, 2016

By: Evie

Wiedemann-Steiner Syndrome

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Our daughter was diagnosed (I think 2014) aged 8. We knew Evie had some sort of syndrome when she was born in 2006. Initially the geneticists thought it was Cornelia de lange syndrome then she got the diagnosis a few years ago.

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