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Which advice would you give to someone who has just been diagnosed with Adrenal Cortical Carcinoma (ACC)?

See some advice from people with experience in Adrenal Cortical Carcinoma (ACC) to people who have just been diagnosed with Adrenal Cortical Carcinoma (ACC)

Adrenal Cortical Carcinoma (ACC) advice
2 answers
Seek a specialist, don't be afraid to get a second or even 3rd opinion. Don't settle for a Dr who is not experienced with ACC. I can't stress that enough!
I was blessed to get a Dr with knowledge on my 2nd try! If your first Dr says he can do laparoscopic surgery, run!
If he says go home and die, Don't! Find another dr

Posted Mar 9, 2018 by Accmom 2500
Knowing that the people treating you are experienced with the disease. I had three unnecessary surgeries before someone finally listened to me about my symptoms.

Posted May 22, 2018 by Kim 1600

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ADRENAL CORTICAL CARCINOMA (ACC) STORIES
Adrenal Cortical Carcinoma (ACC) stories
Lung and liver mets. Initial surgery 2014. EDP- had some stability and some growth. 2nd abdominal surgery. Both Lungs 2015. Used Caris and tried Irinotecan - some shrink but new growth too. 3rd abdominal surgery. Lung surgery. Ablation. Tried taxol- ...
Adrenal Cortical Carcinoma (ACC) stories
My daughter Megan was diagnosed with ACC when she was 14 months old in 2011.  She had the tumor the adrenal glad and part of her lung removed.  She then went through 8 months of intense chemothrapy(5 differant kinds)  she want home from the hospi...
Adrenal Cortical Carcinoma (ACC) stories
My husband, was suffering from high blood pressure for a couple of years, but not to poorly with it. In August 2015, his feet began to swell badly and he gained lots of weight over a month. We where sent to Kings hospital London, and found he was suf...
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My gorgeous brave mother aged 44 has been diagnosed with stage 4 ACC that has spread to the lungs. She's currently undergoing chemo at the christies and taking mitotane. I have a 9 month old baby son and trying to do everything I can to support her t...

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Adrenal Cortical Carcinoma (ACC) forum

ADRENAL CORTICAL CARCINOMA (ACC) FORUM
Adrenal Cortical Carcinoma (ACC) forum
Adrenocortical carcinoma (ACC) is a rare, highly aggressive cancer of adrenal cortical cells, which may occur in children or adults. Most adrenocortical carcinomas are not diagnosed until they have grown quite large.Adrenocortical carcinoma is a rare...

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