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Which advice would you give to someone who has just been diagnosed with Agenesis Of Corpus Callosum?
See some advice from people with experience in Agenesis Of Corpus Callosum to people who have just been diagnosed with Agenesis Of Corpus Callosum
Find the Facebook group, join it, and ask questions. We are a family. We help, encourage, and celebrate with you.
Posted Sep 11, 2017 by Nickie 2500
It is going to be ok! I have not been diagnosed myself but I know the devastating feeling of getting the diagnosis for a loved one. The unknown and uncertainty can be overwhelming. Start with early intervention therapies. Find support groups such as the Agenesis of the Corpus Callosum Facebook pages. Doctors can give a negative outlook on things sometimes. Don't listen to it if they do. They cannot predict everything and more times than not, people with this condition or others, prove them wrong repeatedly. Try and stay positive as hard as it may seem, find those support groups and reach out to others. Knowing you are not alone in this can be the most useful tool.
Posted Oct 30, 2017 by Brandi 1500
a good advice i dont know
Posted Oct 30, 2017 by alex 3050
To a parent who's child has just been diagnosed, don't listen to all the bad things doctors will tell you. Join support groups if you are on Facebook you will find out it is not all bad and many parents who's child does what doctors say they will never do. Take one day at a time and enjoy every achievement no matter how small it may be. Adults, join support groups on Facebook there are many adults diagnosed as children or later in life who will be happy to talk to you.
YOU ARE NOT ALONE :)
YOU ARE NOT ALONE :)
Posted Jul 4, 2019 by Rachel 2100
