My daughter Isabella was diagnosed with alagille syndrome two years ago. She is six years old and I'm the first grade at school. She has had problems associated with alagille since birth. Her itching has been severe since she was a few days old. It h...
My son suffers from ALGS. He was diagnosed at 3-yrs of age by an excellent cardiologist at Seattle Children's. Although he does not have the liver complications, there are numerous other systems that we continue to find are affected as he grows:...
My name is Shambhavi Ravishankar and I'm from Bangalore, India. I live in New Delhi. I am 24 years old. Neither of my parents (or anyone in the family that we know of) have ALGS and I have a younger brother who also doesn't have ALGS. I've moved arou...
Our son was born September 2013. It was almost a year before we had a true diagnosis of alagille syndrome. His only effects his liver. He is on the transplant list and awaiting a phone call.
