I just wanted to quicky say I totally understand. I took my first Firazyr shot a few weeks ago for a stomach swell. It wasnt until I looked back I realizedI've had a few throat swells ( in the past years) and had no idea what they were. Thank God for some sort of relief and rescue meds.
I'm also the only person in my family that has HAE. Thank God my daughter doesn't have it. It's a scary disease. On numerous occasions we could have died of throat swells, but we're still alive to tell the world what this disease is and what we experience on a daily bases. You're not alone!