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Which advice would you give to someone who has just been diagnosed with Aniridia?
See some advice from people with experience in Aniridia to people who have just been diagnosed with Aniridia
Read as much about the condition as you can find a specialist who knows and has treated aniridia before
Posted Mar 23, 2017 by KATHERINE HASLAM 1000
Speak to anyone at anuk or rnib etc . Get all info you can. Not scare monger yourself with random Google search.. it's not the end of the world ... it frightened me as a mother. But 2 years on .I'm giving it my all to research and learn to help my girl .
Posted Jan 30, 2019 by Rachel and Scarlett 1400
Translated from spanish
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I find it hard to think that someone 20 years old, you run out of diagnose aniridia.
Everything that has been in our hand what we have done.
Maybe to teach people that we are not people rare that we only have a rare disease.we are equal to others.
Everything that has been in our hand what we have done.
Maybe to teach people that we are not people rare that we only have a rare disease.we are equal to others.
Posted Jun 17, 2017 by Antonia 2501
Translated from spanish
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Do not despair when they are diagnosed with the disease because their children are going to have a normal life like any other person going to be able to study , work, raise a family, do sports etc .. The advice I would give is that you seek a physician in the place where they reside that treat the pathologies of their children and not travel all over looking for a place where to cure aniridia because it is not curable and if your children have strabismus try to fix it (with patches to avoid operations) because children suffer discrimination for this reason and not because of his low vision and this the day of tomorrow can affect them psychologically
Posted Sep 16, 2017 by Loana 1701
