What is the life expectancy of someone with Arachnoiditis?

Life expectancy of people with Arachnoiditis and recent progresses and researches in Arachnoiditis


Arachnoiditis is a rare and debilitating condition characterized by inflammation of the arachnoid, one of the membranes surrounding the spinal cord. It is typically caused by direct injury to the spine, infection, or as a complication of spinal surgery, lumbar punctures, or myelograms. The inflammation can lead to the formation of scar tissue, which can cause the spinal nerves to stick together and malfunction.



The symptoms of arachnoiditis can vary from person to person, but they often include chronic pain, numbness, tingling, and weakness in the lower back, legs, and feet. Some individuals may also experience bladder and bowel dysfunction, sexual problems, and even paralysis in severe cases. The condition is chronic and progressive, meaning it tends to worsen over time.



Given the complexity and individual variability of arachnoiditis, it is challenging to provide a definitive life expectancy for those affected. The prognosis depends on various factors, including the severity of the condition, the extent of nerve damage, the effectiveness of treatment, and the overall health of the individual.



It is important to note that arachnoiditis is a chronic condition that requires long-term management and care. While there is currently no cure for arachnoiditis, treatment aims to alleviate symptoms, slow down the progression of the disease, and improve the individual's quality of life.



Medical interventions for arachnoiditis may include a combination of pain management techniques, such as medications, physical therapy, nerve blocks, and spinal cord stimulation. Additionally, counseling and psychological support can be beneficial in helping individuals cope with the emotional and mental challenges associated with chronic pain and disability.



It is crucial for individuals with arachnoiditis to work closely with a healthcare team to develop a personalized treatment plan. Regular follow-up appointments and adjustments to the treatment approach may be necessary to address changing symptoms and needs.



While arachnoiditis can significantly impact an individual's quality of life, it is important to remain hopeful. Many people with arachnoiditis are able to manage their symptoms and lead fulfilling lives with the right support and treatment.



Life expectancy for individuals with arachnoiditis can vary widely. Some individuals may experience a relatively stable condition with manageable symptoms, allowing them to live a near-normal lifespan. Others, particularly those with severe forms of arachnoiditis and significant nerve damage, may face more challenges and a potentially shortened lifespan.



It is crucial to emphasize that each case is unique, and generalizations about life expectancy should be approached with caution. The impact of arachnoiditis on life expectancy is influenced by numerous factors, including the individual's overall health, access to healthcare, lifestyle choices, and the presence of any underlying conditions.



While arachnoiditis can be a debilitating condition, it is important for individuals and their loved ones to focus on managing symptoms, seeking appropriate medical care, and maintaining a positive outlook. Support groups and online communities can provide valuable resources and a sense of belonging for those affected by arachnoiditis.



Ultimately, the goal is to optimize the individual's quality of life and provide the necessary support to navigate the challenges associated with arachnoiditis. By working closely with healthcare professionals, staying informed about the latest treatment options, and adopting a holistic approach to well-being, individuals with arachnoiditis can strive for the best possible outcomes.


by Diseasemaps

There has been no real long term scientific research on life expectancy of patients who have Arachnoiditis to my knowledge. Leaving Arachnoiditis untreated can lead to adhesive Arachnoiditis, more nerve damage, pain, and progression of the disease. There is no know cure for this disease, but early detection and diagnosis can mean the difference between a life filled with pain and the possibly of stopping the progression.

5/9/19 by ASAP Arachnoiditis society for awareness and Prevention

People who suffer from AA usually live to their normal life expectancy. Every case is different, chronic pain in itself can shorten life span and this disease is different for everyone so it's hard to say. For some people it progressive for others it's not. Surgical procedures or further injury can progress the diagnosis but it really depends on what nerves are effected and where. There have been few reported cases of death from AA as scar tissue spreads it can shut down parts of the central nervous system but cases are rare

4/5/17 by Josh 2600

Arachnoiditis has long been considered a "rare" condition, so hardly any research has been done on it or on a patient's life expectancy. Just recently, some research on hormone therapy has been done by Dr. Forest Tennant in California. Unfortunately, he is no longer taking new patients. I have also heard about stem cell research, but the progression is still in its infancy. As of today, there is no real effective treatment or cure for Arachnoiditis. Life expectancy, as far as I'm aware, is unknown.

4/7/17 by Barbara 1000

We have a normal life-expectancy, but things can get more difficult over time or if there are additional injures or surgeries on the spine. Avoid injections into your spine and avoid back surgery unless it is to save your life.

4/11/17 by Kelly 5450

I have never in my life know pain as I have had with Adhesive Arachnoiditis. I never knew what it was until I got it from an Epidural Spine Injection. The PMD injected me with Bacterial Meningitis and managed to puncture the Arachnoid Membrane as well. The Infectious Disease doctor and Neurosurgeon were the Drs. that told me what I have and that there is no cure for it. My nightmare began in July of 2015, the stress has caused me to have 4 heart attacks and I lost 70 pounds the first year.. My legs and feet are loosing feeling now and only get worse each month. I was told by the infectious disease doctor that eventually this disease will kill me. I'm not afraid to die, I'm afraid it won't happen soon enough.

5/18/19 by Ken 100

Statistics say it takes 10 years off ones life. My suggestion would be don't worry about it. Try and live your life to the fullest possible

5/18/19 by nancy 2500

Dr. Burton estimated that, if untreated, arachnoiditis could take 12 years off of life expectancy.

1/5/20 by krisrwalters 1300

Everyone is different & the progression of the condition

1/5/20 by Jcrandall72 2500

Life expectancy is about the same as another person as long as you follow everything your suppose to do however some people has shortened due to strong meds and not listening to the doctor

1/5/20 by Deerut1963 2400

Arachnoiditis has long been considered a "rare" condition, so hardly any research has been done on it or on a patient's life expectancy. Just recently, some research on hormone therapy has been done by Dr. Forest Tennant in California. Unfortunately, he is no longer taking new patients. I have also heard about stem cell research, but the progression is still in its infancy. As of today, there is no real effective treatment or cure for Arachnoiditis. Life expectancy, as far as I'm aware, is unknown.

1/7/20 by Staplehurst17 4050

No controlled studies only guesses

5/1/20 by KenNwv 500

Everyone is different Dr Long in the 1970s stared this disease shortens one live by 12 years today that is incorrect the better you get to understand adhesive arachnoiditis chemically Induced and how to manage the free ride on the daily rollacoaster the better you will be

7/9/20 by Derek 3000

Why worry about how long yon can live with this or any disease. You may be in a plane crash or car wreck, or even hit while crossing the street going to your doctor's office and killed. Or perhaps a tree will crash through your roof during a storm and land on you. There are ever so many other possibilities that it is a waste of time to worry how long we have left to live with this disease. Take up a new hobby and find new things to do when your body stops working in some way. Volunteer on phone projects, read to those whose eyes will no longer let them see well enough. That can be done by phone for a friend or relative. You need know how much they will enjoy it and so will you. You will find it will also give you both so much to talk about and even research! I, too, live with this devastating disease, and have endured the pain and disability for over 40 years. I admit there are days I've begged for my life to end because of the terrible pain. My family and friends did not believe there was anything wrong with me and were not supportive at all for the first several years because I was so young, and none of them had ever heard of it.

11/12/20 by Kathleen 100

It’s shortened by about 15 years.

3/20/21 by Anna 2300

because it causes lots of other problems in the body people life expectation can be lowered by 12 years.

7/22/21 by Vincent 3420

Life expectancy has been quoted in some places as possibly being as much as 15 year less. However, no studies have been done in a decade to query this hypothesis. New treatment protocols to lower neuroinflammation and balance neurohormones in past 5 years may have impacted the life expectancy positively

11/15/21 by ACMCRN 2200

No correct answer. It can be affected by other health factors. How well you take care of yourself, Genetics. But severe pain puts a burden on your whole-body mind and soul. When My pain is severe, and I take strong meds I feel like my heart could burst. The stress level is very high.

1/7/22 by Machinetoolmkr 5550

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