What signs or symptoms may make you suspect you may have Bardet-Biedl Syndrome. People who have experience in Bardet-Biedl Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

▷ How do I know if I have Bardet-Biedl Syndrome?

Stories of Bardet-Biedl Syndrome

BARDET-BIEDL SYNDROME STORIES

VIEWS

BY

Hi my name is Ryan, im 14 years old and have BBS1. My main struggles are my weight and my vision, i also have been diagnosed with Autism and MR. I got my genetic diagnoisis of BBS about 2 years ago. I have night blindness and have negative 14 i...

928

1/26/16, 4:47 PM by Ryan Forsblade

ORLANDO

Have a 20 year old son with the syndrome. He is BBS 10, no health issues, mild obesity and his vision is almost all gone.

756

12/30/15, 11:57 AM by Ingrid

MARY'S STORY

Please register your BBS loved one in CRIBBS! [email protected] We have a Center of Excellence for Treatment of BBS, Located at the Marshfield Clinic, contact the director, Dr. Bob Haws, [email protected] for deta...

731

12/30/15, 3:32 PM by Mary

HELLO!

Hello, my name is Bea. Maried with my great and loving husband, Marco. Together we have three children. Tamara, Bart and Bas. Bart en Bas are twins. Tamara en Bas have BBS. It was great to see this map with all this people with BBS! I could show Ta...

689

1/27/16, 9:20 AM by Tamara en Bas Brinkman (30 augustus 2000, male)

BARDET-BIEDL NETHERLANDS

Our oldest son has Bardet-Biedl Syndrome (BBS). We are setting up a family foundation in the Netherlands for BBS. Contact us: [email protected] Check our website: www.bardetbiedlsyndroom.nl

How do I know if I have Bardet-Biedl Syndrome?