4
How is Carcinoid Syndrome diagnosed?
See how Carcinoid Syndrome is diagnosed. Which specialists are essential to meet, what tests are needed and other useful information for the diagnosis of Carcinoid Syndrome
Well, it can be found by blood and urine tests IF the doctor is aware of Carcinoid at all. I figure I was misdiagnosed for many years before the diagnosis was made. Even when the diagnosis was made, it was a fluke, I went to surgery after 6 months of daily abdominal pain to do exploratory surgery. I ended up with a bowel resection and pathology from that revealed the Carcinoid. A good Gastroenterologist is the one person I would think would be able to discover this disease based on the symptoms. A good Neuroendocrine Specialist is the one doctor that a person diagnosed with this disease should seek out. Visit www. carcinoid.org - find a doctor - one that is marked with the words SPECIALIST - because that means they actually have experience in treating the disease - the others on the list work with the disease but are not SPECIALIST - you want a SPECIALIST. Other tests which can be used to monitor the disease are CT and MRI. Carcinoid lights up on an Octreoscan - which is one of the first scans I had after my surgery discovery. The latest technology is a Galium 68 scan.
Posted Sep 14, 2017 by Vickie 2000
