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Is it easy to find a partner and/or maintain relationship when you have Charcot-Marie-Tooth Disease?
People with experience in Charcot-Marie-Tooth Disease give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Charcot-Marie-Tooth Disease. What are the possible difficulties in having a relationship?
I hate to speculate on this but I would say yes and no if you don’t have the support of your partner When you have this disorder it is very hard to manage life,. Finding a partner that can except the deformities and Limitationsof the disease is hard.
Posted May 21, 2018 by Joe 4050
Is very hard. But i hope!
Posted May 22, 2018 by Gabriel 1700
I was with my husband for 12 years before being diagnosed and starting symptoms. We already have watched my father struggle. Doesn't make it easier when someone is diagnosed with a disease that will affect everyone's life. Keep up the communication. Take care of yourself and understand when your partner is over bearing at times it is out of love and worry.
Posted May 22, 2018 by Dawn 4050
It should be no harder than for anyone else. Of course, some people don’t like “disease” or the idea of having potentially disabled children, so that can be problematic. Honesty is the best policy. Educate your partner, make them understand the ramifications and there shouldn’t be a problem.
Posted May 23, 2018 by Karencmt 2620
Yes it is. You just have to find someone that will love you even when you might have to be in a wheelchair. And they will have to want to help you a lot including with opening things and getting around. They also have to know where your breaking point is and your weaknesses so they know when to not push you harder
Posted May 23, 2018 by SavShelton 2550
Yes, but it only fair and right to advise your partner, in relation to reproduction issues.
Posted May 29, 2018 by Daniel 4200
My wife is extremely understanding and helpful
Posted Dec 8, 2019 by Bob 1400
Perhaps it is slightly harder to find/maintain a relationship with CMT because it is a progressive disease. But if you have a strong relationship you can weather anything.
Posted Feb 7, 2020 by Roberta 1900
THIS ENTIRELY DEPENDS ON THE SEVERITY OF THE PERSON'S DISABILITY WHEN TRYING TO FIND A PARTNER AND THE PERSON'S ACCEPTANCE OF THE DISORDER. IF THE PERSON IS UNABLE TO ACCEPT (NOT RESIGN TO) THE PRESENCE OF THE DISORDER IT IS LIKELY TO HAVE A NEGATIVE EFFECT ON AN ABILITY TO FIND A PARTNER. MAINTAINING A RELATIONSHIP IS DEPENDENT ON THE PERSON'S BEING OPEN AND HONEST WITH THE PARTNER. IT IS ALSO DEPENDENT ON THE PARTNER'S ABILITY TO HANDLE A POSSIBILITY THE AFFECTED PERSON MAY BECOME INCREASINGLY DEBILITATED. RELATIONSHIPS IN WHICH ONE PARTNER BECOMES DISABLED OR IS THREATENED WITH A SEVERE AND/OR CHRONIC DISEASE ARE VERY LIKELY TO END IN THE RELATIONSHIP ENDING.
Posted Feb 9, 2020 by Jim 3000
Translated from spanish
Improve translation
If. There are No drawbacks
Posted Sep 4, 2017 by Lorena 2000
