Sadly there is no cure for CMT. But there are a few medicines that can help. Over the counter medicines that are good for CMT are Tylenol or ibuprofen. There are medicines that you can get from your doctor, but rest is very important in recovery.
No current treatments available at this time. Best option is to maintain a healthy lifestyle, low to moderate exercise focusing on core strengthening and stretching. Surgical and bracing options when necessary.
Stretching, low impact ( swimming is excellent), massage
In use 900 mg 3 x a day gabapentin for nerve pain
I have cbd/thc cream for sore body
And eat and smoke pot for pain daily
Try to stay away from the whites- sugar,flour,salt
There isn’t any medication to cure Charcot-Marie-Tooth (CMT). Using anti seizure medications like neurontin helps with the nerve pain. It depends on what a persons symptoms are as to what medication is tried. I also take Effexor XR for the burning neuropathic pain. Pain medications are frequently not useful as they don’t help with nerve pain. They do help with the damage caused by the deformities that occur with CMT.
I was born with CMT 1a in 1966 but not officially diagnosed until 31 yrs later at Walton Neurosurgical Centre, Liverpool. I had a Bilateral Achilles Tendon Release Op at the age of 2yrs +. at Alderhey Children's Hospital and had annual reviews wit...
I dont have CMT but both my husband and 6 year old son do. Living and learning from the daily battles with both of them has really taught me a lot about how this disease affects and differs from each person. To help them I am an active participan...
I was diagnosed late in life and only had to stop working just over a year before i was 65 . I think what helps me that this cmt2 is so slow advancing in my case. But not knowing anyone else with cmt gives me a feeling of isolation although i have a ...