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What are the best treatments for Charcot-Marie-Tooth Disease?

See the best treatments for Charcot-Marie-Tooth Disease here

Charcot-Marie-Tooth Disease treatments
17 answers
Healthy Diet, Exercise, Positive Outlook

Posted Feb 21, 2017 by Adrian 250
Meet with your drs. About pain management , stretching, as much exercise and you can handle

Posted May 21, 2018 by Joe 4050
Walk and more gymnastic!

Posted May 22, 2018 by Gabriel 1700
There is no cure. Treatments include medications to help with nerve pain. Braces for stability while walking.

Posted May 22, 2018 by Dawn 4050
Daily stretching
Pacing oneself
Obtaining an educated care team

Posted May 22, 2018 by Suzie 500
Physiotherapy and exercise
Orthotics
Surgery

Posted May 23, 2018 by Karencmt 2620
Exercise and physiotherapy.

Posted May 23, 2018 by Darren 550
Sadly there is no cure for CMT. But there are a few medicines that can help. Over the counter medicines that are good for CMT are Tylenol or ibuprofen. There are medicines that you can get from your doctor, but rest is very important in recovery.

Posted May 23, 2018 by SavShelton 2550
Surgery and exercise

Posted May 29, 2018 by Daniel 4200
Descansar
Pensamento positivo
Repouso
E ter cuidado com a alimentação

Posted Dec 9, 2019 by Moisés 200
No current treatments available at this time. Best option is to maintain a healthy lifestyle, low to moderate exercise focusing on core strengthening and stretching. Surgical and bracing options when necessary.

Posted Feb 7, 2020 by Roberta 1900
Pain management, activity as tolerated including physical therapy, swimming, and stretching. Using AFO’s as ordered.

Posted Feb 8, 2020 by Rhonda 1300
Stretching, low impact ( swimming is excellent), massage

In use 900 mg 3 x a day gabapentin for nerve pain
I have cbd/thc cream for sore body
And eat and smoke pot for pain daily
Try to stay away from the whites- sugar,flour,salt

Posted Feb 9, 2020 by Susan 600
AFO'S, MODERATE EXERCISE, CHOOSING CAREERS WITH LIMITATIONS IN MIND, USE OF OTHER MOBILITY AIDS, AS NEEDED

Posted Feb 9, 2020 by Jim 3000
There isn’t any medication to cure Charcot-Marie-Tooth (CMT). Using anti seizure medications like neurontin helps with the nerve pain. It depends on what a persons symptoms are as to what medication is tried. I also take Effexor XR for the burning neuropathic pain. Pain medications are frequently not useful as they don’t help with nerve pain. They do help with the damage caused by the deformities that occur with CMT.

Posted Feb 13, 2020 by Linda 1550
what is best for me might not be what is best for others... but i use pain meds and a wheelchair to help me..

Posted Oct 1, 2021 by Lili 900
Translated from spanish Improve translation
Therapy kinesica and occupational

Posted Sep 4, 2017 by Lorena 2000

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World map of Charcot-Marie-Tooth Disease

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Stories of Charcot-Marie-Tooth Disease

CHARCOT-MARIE-TOOTH DISEASE STORIES
Charcot-Marie-Tooth Disease stories
I was born with CMT 1a in 1966 but not officially diagnosed until 31 yrs later at Walton Neurosurgical Centre, Liverpool.   I had a Bilateral Achilles Tendon Release Op at the age of 2yrs +. at Alderhey Children's Hospital and had annual reviews wit...
Charcot-Marie-Tooth Disease stories
I dont have CMT but both my husband and 6 year old son do.  Living and learning from the daily battles with both of them has really taught me a lot about how this disease affects and differs from each person.  To help them I am an active participan...
Charcot-Marie-Tooth Disease stories
Diagnosed in early 20s. Had symptoms all of my life.  
Charcot-Marie-Tooth Disease stories
I was diagnosed late in life and only had to stop working just over a year before i was 65 . I think what helps me that this cmt2 is so slow advancing in my case. But not knowing anyone else with cmt gives me a feeling of isolation although i have a ...
Charcot-Marie-Tooth Disease stories
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Charcot-Marie-Tooth Disease forum

CHARCOT-MARIE-TOOTH DISEASE FORUM
Charcot-Marie-Tooth Disease forum
Is anyone here from Phoenix Arizona? 
Charcot-Marie-Tooth Disease forum
Is there anyone with C.M.T that lives in or near Waukesha Wi?

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