What is the life expectancy of someone with Cluster Headaches?

Life expectancy of people with Cluster Headaches and recent progresses and researches in Cluster Headaches

Well this is a loaded question. Some people go way to early mostly because they can't bear the pain of the disease and don't the proper support group. Others are able to function and live a semi normal life and live a long time. I think a song time goes on we will continue to see new treatments like Neurostimulation that will become more prevelant. There are others that are currently being researched such as Ketamine.

Posted Feb 21, 2017 by Lucas 1152

CH is not lethal, only suicide is a risk

Posted Mar 3, 2017 by Yoda 4292

I know that the life expectancy of cluster headache sufferers exceeds 65 (where I am now).
On the forums you will find people of all ages. While you feel extremely sad for children as young as 7 copping this at such an early age there are some long time sufferers who have had to deal with it throughout their life.
Cluster headaches are also known and well named as suicide headaches so there have been sufferers in the past that have not achieved the term of their natural life.

Posted Mar 4, 2017 by Donna 1005

I thought it was the same as everyone else's unless there is something I don't know about. I know there is something available at the moment which is an implant in the skull but don't think it's widely available yet.

Posted Apr 27, 2017 by Matthew Bcfc 1000

Life expectancy is good. New thing is botox injections and implant of neuro stimulators.

Posted May 21, 2017 by Pepe922 2000

We are all ages. I really don't know

Posted Jun 3, 2017 by Maria 2001

It is the same as someone that doesn't get CH

Posted Jun 4, 2017 by Tim 2150

Will power and support groups

Posted Jun 11, 2017 by Jeff D 2000

Other than the risk of suicide there seems to be no correlation, no permanent damage physiologically anyway.

Posted Sep 23, 2017 by stan 1000

The other name for cluster headaches is suicide headaches. The headaches don't kill you directly, being worn down by them does.

Posted Oct 18, 2017 by Nigel 500

Cluster Headaches are not killers - -they are not cancer or heart disease. However, there are secondary conditions that go along with CH. For example, I have Horner's Syndrome from my Chronic Cluster Headaches. I had four MRIs to determine that the Horner's was caused by CH and not something life-threatening. My vision is slightly impaired as a result. I would say that someone with CH can life a normal lifespan if they make a decision to not let the pain control their life and to keep living life to the fullest possible. Keep participating in studies about CH, be informed about new treatments, do not give up -- it is possible the scientists/doctors will one day figure this out.

Posted Oct 26, 2017 by Lee-Alison 2000

Life expectancy is normal. Suicide is high in those with cluster headaches

Posted Dec 22, 2017 by Ange 200

There are no assumptions to anyone about this ... Apparently not everyone has yet understood the disease and is not aware of what suffering it is causing ... Perhaps in the future they will understand more

Posted Feb 1, 2018 by Danny 3050

Normal, life is not shortened.

Posted Oct 20, 2018 by Michael Trapp 1600

same as other people

Posted Nov 7, 2018 by Oliver 3000

Well this is a loaded question. Some people go way to early mostly because they can't bear the pain of the disease and don't the proper support group. They throw themselves for a train or jump of a building or do other things to end their life.Others are able to function and live a semi normal life and live a long time. Lucky enough in time we will continue to see new treatments like Neurostimulation that will become more prevelant. There are others that are currently being researched such as Ketamine. CH is not lethal, only suicide is a risk.

Posted Nov 7, 2018 by MC 2500

I don't know the answer yet

Posted May 16, 2019 by vasilis 2500

Overdosing and addiction can affect quality and longevity of life. I don't believe life expectancy is directly affected by clusters. They aren't associated with any long term damage as far as I know and what my doctors/specialists have discussed with me. But self-harm is a big concern.

Posted May 20, 2019 by Kendra 4550

Life expectancy is not directly affected by CH. However life expectancy can be affected by things we do to manage the pain of CH like self- medication through alcohol or drugs, self-mutilation, or suicide.

Posted Aug 22, 2019 by Judy 1600

Clusters are not life threatening, but they have been dubbed "suicide headaches" for good reason.

Posted Apr 13, 2020 by Larry 5050

The diagnosis of cluster headaches doesn't change your life expectancy in the primary condition.

Posted Jul 27, 2020 by Stėph 3000

Life expectancy of primary cause cluster headaches is the same as any other non cluster person.

Posted Jul 27, 2020 by Stephanie 4650

I do not know the lifespan expectancy of cluster headache suffers. But I imagine it’s significantly lower than those who do not suffer from cluster headaches. I based this on the fact that many times I’ve considered living up to the nickname given to cluster headaches which is suicide headaches. Put my faith in God has prevented that so far.

Posted May 20, 2022 by [email protected] 2500

Translated from spanish Improve translation

My doctor tells me that it can't I would die with the passage of time the crisis began to subside

Posted May 9, 2017 by Nélida 1001

Translated from spanish Improve translation

No. Is. Dies. Step. When. Disappear. A. Advanced age. But. E. Read. That. There are. Cases. That. Disappear. Within A few years of startup. Of the disease. But in a. Very low. Percent of cases

Posted Sep 17, 2017 by alex 900