Living with Cluster Headaches. How to live with Cluster Headaches?

Can you be happy living with Cluster Headaches? What do you have to do to be happy with Cluster Headaches? Living with Cluster Headaches can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Cluster Headaches

Build a good support group around you. I can't stress how important this is. Without mine I probably would not be here writing this right now. Second find a treatment that works for you that helps lesson the time of the attacks.

Posted Feb 21, 2017 by Lucas 1152

accept and search adequate help by a neurologist

Posted Mar 3, 2017 by Yoda 4292

Living with cluster headaches is like riding a roller coaster - you just have to ride it as there is no getting off.
Lifestyle requires adaption to ensure that whatever you decide to do you have yourself covered to compensate with possible onslaught of an attack. Don't leave home without your "safety net" medications, don't go anywhere where noise levels may be triggers and don't go anywhere that you can't remove yourself from should an attack come on. This also includes over exercising.
What do you have to do to be happy with cluster headaches?
Who wrote this question? Obviously someone with little knowledge of cluster headaches. Happiness is not a consideration with cluster headaches - it is misery most of the trip. Do more research!!

Posted Mar 4, 2017 by Donna 1005

Once I was finally diagnosed with cluster it was a big relief. Was sick of being treated like a junkie, craving pain mess. Once who have proper treatment in place I believe who you be happy and have a decent quality of life.

Posted Apr 27, 2017 by Matthew Bcfc 1000

Accept it. There is not much happiness with this disease. Make the most of the pain free days.

Posted May 21, 2017 by Pepe922 2000

No. Never happy with cluster headaches.

Posted Jun 3, 2017 by Maria 2001

No you can not be happy while suffering with a CH at the time

Posted Jun 4, 2017 by Tim 2150

You can't be happy being chronic I never get a break

Posted Jun 11, 2017 by Jeff D 2000

Being happy under any circumstance is up to the individual. I will admit that this has changed my life in just 5 weeks of 2 to 3 a day, 3 hour torture sessions. I do not take for granted the moments I am without pain. I have developed a sense of urgency I never had before. Just make the most of your good days!

Posted Sep 23, 2017 by stan 1000

You can be happy only if you decide to keep on living and to share your pain with a partner or the Cluster Headache Support Group or a friend. In isolation depression can easily set in. It is important to wake up everyday and to decide that the day is going to be a good one, that cluster headaches will not take over your life and happiness.

Posted Oct 26, 2017 by Lee-Alison 2000

Nightmare :\

There is no advice .. Everyone and how he lives with it

Posted Feb 1, 2018 by Danny 3050

I is possible with my families support.

Posted Oct 20, 2018 by Michael Trapp 1600

keep smiling. adapt to clockwork

Posted Nov 7, 2018 by Oliver 3000

Stay with us and hang in there there is hope for new treathment. You can be happy during the time you don t suffer from the attacks if you have the episodic version . and for the people with chronic cluster headache please keep faith and hope they are busy as ever with experienting new treatments!

Posted Nov 7, 2018 by MC 2500

Try not to depress. It will be pass. Stay strong

Posted May 16, 2019 by vasilis 2500

Educate yourself as much as you can. The more you learn about your condition and how it affects you and your life, the less ashamed you'll feel about it. Your biggest fear should be not knowing how to live with it!

Posted May 20, 2019 by Kendra 4550

Keep hydrated and don't overexert yourself. Be aware of and avoid triggers. Always have an abortive medication or high-flow Oxygen available.

Posted Aug 22, 2019 by Judy 1600

Cluster episodes arise without much warning, and require immediate and total attention.
I have had them while driving with my young children in the car. Pulling over and having children watch their daddy cry is not a pleasant experience. Clusters often settle in to predictable schedules during their episodes. Learn to recognize early symptoms and occurrence intervals, and try to place yourself in a safe atmosphere during the episode.

Posted Apr 13, 2020 by Larry 5050

Living with cluster headaches can be challenging, but its important to remember you are not defined by your condition / disability and its important to live life to the fullest that you are able

Posted Jul 27, 2020 by Stėph 3000

Living with cluster headaches can be challenging due to the severe nature of the pain, this can also cause depression and anxiety which reduces the quality of life for people who are affected.

Its important to seek support, a decent neurologist and headache specialist. This will help speed up the process of treatments and preventatives that work for you.

And don't forget, you're never alone! We are like our own little cluster family! Reach out, we are always ready to support eachother.

Posted Jul 27, 2020 by Stephanie 4650

I do enjoy alcoholic beverages. Sometimes too many I’m told. When I have a cluster, I learned early on to not touch alcohol in any way shape or form unless I want an already severe headache to multiply exponentially and last longer than usual. My cluster headaches make me be sober for 6 to 8 weeks every year and a half. That is the only benefit I can think of.

Posted May 20, 2022 by [email protected] 2500

Translated from spanish Improve translation

We may not stop to beat, there are days that you can't even get up, it is a pain that is there always in my case never goes to the pain jan the eye but not left me a normal life, but I won't lie in bed depressed .

Posted May 9, 2017 by Nélida 1001