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Which advice would you give to someone who has just been diagnosed with Cold Urticaria?

See some advice from people with experience in Cold Urticaria to people who have just been diagnosed with Cold Urticaria

Cold Urticaria advice
10 answers
Start taking Zertec and/or Zantec daily. If you go outside when it's less than around 55 degrees make sure you bundle up completely with as little skin showing as possible.

Posted Feb 27, 2017 by Ettienne 1295
Join support groups and read up a lot. You need to be your own advocate with a disease this rare.

Posted Mar 20, 2017 by Jennifer Entwistle 1155
Be aware of your surroundings, wear clothing that keeps you warm and sweat free. Don't expose yourself to wind, make sure your air conditioned aware (most places have air conditioning during summer) be careful while swimming even in pools. Try not to eat cold foods or anything with ice.

Posted May 4, 2017 by Paulette 1000
Be aware
Listed. To advice but don't believe all of it
Be preparered
Be proactive

Posted Apr 11, 2018 by Miranda 600
You can live with this. There are treatment options to reduce the severity of a reaction. You can do almost anything everyone else does.

Posted Sep 24, 2018 by 6000
See an allergist. Don't let your GP downplay your symptoms and wait for the possibiity of something bad happening. Not everyone has anaphylactic reactions but some do and until you are challenged, you're not going to know. I also wouldn't have worried anywhere near as much about taking such large doses of antihistamines, it improves my quality of life to do so by a huge amount.

Posted Sep 28, 2018 by Rachel 3020
Keep in mind that Cold Urticaria is rare, and it sounds like it came out of a fairy tale book. When you tell people, they won't always believe you, some will even call you a liar. There are support groups (theres a few support groups on Facebook) for Cold Urticaria and I would suggest to join one.
There are a lot of frustrations and confusion about Cold Urticaria that can be shared with support groups and you will find there are others with the same exact problem and knowing there are others with the same problems is comforting. A support group can always help you with learning the ropes with living with Cold Urticaria.

The most important details I can give you is to always carrying a jacket, because A/C is your enemy; the wind is also a problem and an antihistamine can do wonders.

Posted Oct 26, 2018 by Victoria 3550
Get advice from an allergist that knows about CU.

Posted Jan 20, 2020 by Heather 2500
https://www.healthline.com/health/cold-allergy

Posted Feb 13, 2020 by Deana 3050
Listen closely to your allergist or specialist and follow the treatment plan they lay out for you , and don't be afraid to let them know if something isn't working for you .

Posted Jul 9, 2020 by Jami 1800

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Cold Urticaria stories
Parents noticed my hives at age 5.  Got several allergy tests, including food tests.  I remember at one time they thought I was allergic to hotdogs.  Somehow they figured it out.  
Cold Urticaria stories
At age 14 I hopped out of a pool and had welts all over my body. My uncle (a Dr) said it looked like Raynaud's disease. Later a skin speciliast diagnosed it as Cold Urticaria. I tried anti-histamines for a while but hated the side effects. I prefer t...
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i didn't experience any symptoms of cold urticaria until I was 8 years old. I grew up in Upstate Ny and spent a lot of time playing outside and in the snow. The first time I ever had a reaction, I was sledding with a few friends, and went inside and ...
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I've had OCD my whole life, but when I was 7 or 8, I started getting constant headaches. I went to lots of doctors, and they still can't figure out why I get so much unbearable headaches. Around the same time, I developed Cold Urticaria

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