I was born with Craniosynostosis back in 1955 . The prognosis was not as good as today and the recovery period was much longer . I never made inquiry and it was not discussed much at all growing up . y parents passed away and now I regret not asking questions about my condition . I was hospitalized for several months . I've had terrible headaches and vomiting all my life along with facial pain and sinus pressure . Also , right now I can feel pressure in my head . My eyes hurt a lot . I was crossed eyed also . I believe that the Life expectancy of one with this condition depends on if it was caught early enough as an infant and when the surgery occurred . We can expect to live a long time ! Correction : My parents ....