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What is the life expectancy of someone with Cryopyrin-associated periodic syndrome?

Life expectancy of people with Cryopyrin-associated periodic syndrome and recent progresses and researches in Cryopyrin-associated periodic syndrome

Cryopyrin-associated periodic syndrome life expectancy
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Hello,
Today the life expectancy is long ,will depend on the type of Caps and the time in the delay in the diagnosis.
There are different medications that are working in a great majority of the patients, such as ANAKINRA (Kineret ) I CANAKINUMAB (Ilaris ).
Until recently it was not realized the hope of life and that they knew it was hopeless, but thanks to new breakthroughs and improvement in the diagnosis ,we find ourselves increasingly with patients of a certain age.

Posted Nov 10, 2017 by Angels Alcaraz Martinez 690

Cryopyrin-associated periodic syndrome life expectancy

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I was born in the UK, and suffered (as did my Father) from undiagnosed FCAS for 3-+ years. Intense pain and rash was just referred to as "my wierd disease".   Back in about 2002 I was travelling on business in North Carolina, USA when I developed ...

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