I joined this group in the hope to raise awareness. My son was born with Oesophageal atresia ( now repaired ). A week later we found out he also had dandy walker variant, lissencephaly and spina bifida occulta. Doctors couldn't give us much informati...
I was pre-diagnosed when my mommy was 20 weeks pregnant, and MRI after birth confirmed my syndrome. I'm in lots of therapy and getting stronger everyday.
Julian was born in 2010 and few weeks after his birth we found out he has Dandy Walker malformation - allegedly because of congenital infection with cytomegalovirus (CMV).
He has severe disabilities and is totally dependent on us - he can't hold...
My son Sebastian was born in December 1994, in late summer 1995 he started having seizures. After a few EEG's and a brain mri they said he has Dandy Walker Malformation. He was a bit behind meeting his milestones and the doctors had told me not to wo...
