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As long as basic, sensible precautions are taken and a workable treatment plan is in place with emergency bracelets with your information for treatment in an emergency and you are stable, the morbidity is as everybody else's. However there is certainly added risk if precautions are not taken and in a case where you may be unconscious, eg. in a traffic accident, a limb is broken,or copious bleeding and the emergency services are unaware of your condition, then chances of death become very high ! Always have a bracelet or necklace with your details on and store emergency action details in a container which can be stored in the fridge, a magnetic sign can be stuck on the outside to say what is in the fridge ! I am unaware of any advances that would be available to an NHS patient, sensible precautions will be my watchword and living life as well as I am able.