Welche Ratschläge sollte man einer Person geben, bei der gerade ein Alagille-Syndrom diagnostiziert wurde?

Ratschläge von Fachleuten für ein Alagille-Syndrom für Personen, die kürzlich mit einem Alagille-Syndrom diagnostiziert wurden

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Seeking out for answers and question online in support groups the best way you can get information for just being diagnosed. When i was younger there wasnt the online support group that there is now. And im almost 18 and i still to this date seek out information because with out a doubt someone has at least experienced or is experiencing what you are going through. And the good thing is you could be helping someone else if they ask a question. I really recommend it. And you can look through all the questions asked its perfect.

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