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Obviously, the clots are awful, but managing your medicine with the right team of medical professionals is incredibly helpful! When in doubt about a symptom, I always call my doctor ( hematologist, cardiologist, rheumatologist neurologist) from a pain in my leg or chest to something that is new to me like the first time I experienced a cluster vein. I never had headaches until I developed this disease then developed migraines, but with proper management, I am living a full life!