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great advice from jessica. I am 48 and a survivor! I have two children and have a college education. Be your best advocate is my advice and look beyond what one doctor will tell you. I underwent countless surgeries and years of physical therapy when doctors told my parents not to expect much. There is always proof of miracles out there so don't be jaded by one doctor's medical opinion. Encourage your child and never give up on your child. Your child is special. Did you know that those with AMC have a higher percentage of degrees than the general population? AMC kids overcome obstacles and thrive as adults usually. Don't be discouraged. If you're not discouraged then your child won't be either. Learn as much as you can about the syndrome and it is absolutely worth multiple visits to places like Shriners and teaching hospitals affiliated with Universities. Dont give up!