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Do as much research as you can. Go to as many doctors as you can and try to find a doctor who knows about EDS. Someone who really knows. Not a doctor that asks you what EDS is.
Don't be afraid to try new things, such as k-tape, braces. Try things that might help you. Each case is different, each person is different. Since there isn't much information yet about EDS, and since there are so many different types and collagen can affect us differently, don't be afraid to try braces or whatever to make you feel better.