Welche Ratschläge sollte man einer Person geben, bei der gerade ein Ehlers-Danlos-Syndrom diagnostiziert wurde?

Ratschläge von Fachleuten für ein Ehlers-Danlos-Syndrom für Personen, die kürzlich mit einem Ehlers-Danlos-Syndrom diagnostiziert wurden

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To LIVE, do the things you enjoy while you can, you may not be able to later! Don't think of EDS as a death sentence, think of it as a reason to explore the world and not procrastinate. DON"T be reckless, DO be kind, to both yourself and others. What would I have done differently?, I wouldn't have been such a perfectionist and I would have been less judgmental towards others. Also, I wouldn't have been as demanding on my body physically, wouldn't have pushed so hard and maybe could have avoided several injuries.

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