Original
Work is possible with Evans, but not during severe relapses. In between relapses people can feel fine. I've been thinking about my options and would prefer to work in a relatively sedentary role because if I have a milder relapse that doesn't send me to hospital, I could maybe continue to work. There are risks with active work with low platelets. Minor blows can cause uncontrolled bleeding so can be career ending for professional sportspersons. The haemolytic anaemia can make physical exertion impossible. Even short walks during a relapse can be out of the question.
The best work should be flexible. I'm very lucky as I work for am extremely supportive employer so can do sedentary duties and work from home while I recover from a severe episode. I work in mental health.