Welche Ratschläge sollte man einer Person geben, bei der gerade Hereditären Hämochromatose diagnostiziert wurde?

Ratschläge von Fachleuten für Hereditären Hämochromatose für Personen, die kürzlich mit Hereditären Hämochromatose diagnostiziert wurden

Original


See the answers given further up.

In addition:

Please do not despair if you have to wait for a couple of months before your treatment starts. It is normal for high level of Ferritin that you do phlebotomy once per week during the first weeks/months. It is also normal with a short peak up on the Ferritin level after you have had some of the first phlebotomies. It is also normal that the Transferrin Saturation only drops below 45-50 % at he the very end of the series of phlebotomies and when the Serum Ferritin drops below 50. It also take some time before your extreme tiredness disappear.

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