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The most important thing is to accept that you have HS. It isn't going away. This is probably the most difficult aspect of this disease, but once you've accomplished it, you will be able to find ways to be comfortable and happy. Do you like to read? Make crafts? Crochet? Want to learn something new? This is the time to do it. Take online classes. Join a few online Facebook HS support groups where you will find many people who will offer moral support. Keep your mind occupied and try not to dwell on the disease itself. Even if you are at the point of being disabled, there are things you can do that will uplift you and see your through. Never give up hope.