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You need a good, uplifting set of loved ones with tough skin who can take your outbursts.
The only way I make it day in and day out is my family, boyfriend and my faith in God. IIH has a high sucidie rate. This disease is no joke. Being in pain at level red 24/7 takes a toll on you mentally.
Family and friends who are not supportive and encouraging will make you worse. It is possible to be happy. I have days when I cry from being sad, but for the most part I stay positive and happy. I am on permeant disability because of health but I tons of hobbies, I started a business and do tons of puzzles to exercise my brain.
You need to find what make you happy, do itb with people you love and will allow you to sit and cry when all you can do it hold your head and pray for a bad pain episode to pass.