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Educate yourself (and not just by asking a generic doctor or health care practitioner). Join online groups and forums; learn from others that have been there / are there. Don't waste your time on Infectious Disease "specialists" or other practitioners that are not Lyme-savvy. Keep a detailed journal of your symptoms including dates, duration, severity and recurrence. Know that this is a trial-and-error disorder. Be willing to try more than one thing, knowing that some will not work for you at that time (but could work at another time). Never give up, don't lose hope.