Welche Ratschläge sollte man einer Person geben, bei der gerade ein Pierre Robin Syndrom diagnostiziert wurde?

Rightt now the condition probably seems really scary but things will get better. I remember being told this and not believing it, it felt like one thing after the next. Try and talk to people that have children with prs for reassurance, get advice from your cleft team and try not to panic. The jaw comes forward the cleft can be fixed and by the time your child's 2 you won't see many differences with other children their age.