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It takes on average 7 years, many specialists and misdiagnosis' stop get a diagnosis.
It is usually diagnosed by a neurologist.
My experience, I was referred to a neurologist by an orthopedic surgeon after years of being treated for muscle stiffness and rigidity. She was able to diagnose me based on a neurological exam, the way I walked and my posture. She prescribed me with a very low dose of Valium while she ordered blood tests, specifically an anti-gad 65 blood test and a paraneoplastic and ANA panel. When the tests came back she scheduled an eeg. She ran tests to rule out other diseases before finally diagnosing me with Stiff Person Syndrome.