Welche Ratschläge sollte man einer Person geben, bei der gerade ein Sweet-Syndrom diagnostiziert wurde?

Ratschläge von Fachleuten für ein Sweet-Syndrom für Personen, die kürzlich mit einem Sweet-Syndrom diagnostiziert wurden

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Don't give up. There is always something new to try if you can just figure out what.

Do your own research and find a doctor willing to work with you. Understanding the disease process and a teachable doctor saved me. Finally got it under control and kept me from probable organ failure.

Cholchine is a B12 depleting drug, but none of the doctor knew it. You are supposed to have your levels monitored on long term treatment with it. I already had undiagnosed pernicious anemia before the Sweets diagnosis. B12 helps in some cases of uncontrollable sweets. Many of the symptoms are actually secondary to anemia of chronic inflammation. Not everything should be blamed on Sweets. First rule out everything else that you can do possibly do something about. Be vocal.

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