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Stories of Dysautonomia / POTS

DYSAUTONOMIA / POTS STORIES

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MI VIDA CON DISAUTONOMIA UNA LUCHA CONSTANTE.

Hola soy Aurora tengo 39 años, algunos conocen mis artículos pero nunca he escrito mi vida. Pues a los 17 años me diagnosticaron epilepsia, mi vida cambio, tuve que dejar la escuela por un año mientras encontraban el mejor tratamiento y así fue....

3473

8/8/16, 11:55 PM by Aurora Saez

FALLING OFF MY TOES

While I still worked as a ballet dancer and later a ballet teacher (stopped performing at age 35) my dysautonomia symptoms were easily managed, but durubf times when I did not dance they were much more pronounced. At 32 I had a heart attack due to ...

1015

2/16/16, 3:50 AM by Aletta

NORBERT'S STORY - PRIMARY AUTONOMIC FAILURE

I've had Hypotension attacks since age 11. I am now 69 and was just diagnosed for Primary Autonomic Failure. I know that my diagnosis is really a term that includes Parkinsons (PD), Multiple Systems Atrophy (MSA), and Pure Autonomic Failure (PAF)...

755

2/16/16, 10:15 PM by Norbert

KYLENE'S STORY

I was diagnosed with IST in 2012, was taking calcium blockers to try to control it and I just had to keep increasing them as they kept turning up inaffective. January 2015 I got very sick after taking a vacation. Recovered from that (virus) but never...

740

1/3/16, 11:51 AM by Kylene

POTS

It's a year this October that i've been ill. Was diagnosed just this past May. Struggling with doctors and medications. Hoping to get better.

630

10/20/16, 4:52 PM by GG

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Dysautonomia / POTS forum

DYSAUTONOMIA / POTS FORUM

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GARDASIL

How many of you have received the Gardasil Vaccine (HPV Vaccine) that now have Dysautonomia?

732

by CeCe Hillman

SYNTHROID OR PITOCIN

Anyone gets POTS after talking synthrpid or being induced with pitocin?

546

by Da

RENAL DAMAGE?

I have renal damage. Hypotension may have caused it. Anyone else?

462

by Angie Giles

DISAUTONOMÍA CHILE

Hola! Somos Disautonomía Chile La misión de Disautonomía Chile es contribuir a la sociedad mejorando la calidad de vida de las personas diagnosticadas, en busca de diagnóstico, cuidadores y familias de personas con Trastornos del Si...

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by disautonomia Chile

SOMOS DISAUTONOMÍA CHILE

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by disautonomia Chile

Dysautonomia / POTS and depression