Story about Dysferlinopathy - Miyoshi Myopathy .

My Little story

Jun 10, 2016

By: Angelika


When I was 19, I started feeling muscle weekness and since my sister has LGMD as well I knew it was that! I wanted to leave my fiancé because I didn't want to put him through all that, he didn't want to leave me and stood by me, we got married couple years after that and he was a wonderful husband since than, I have been struggeling to get a diagnosis and the Jain Foundation had been the Best help I could've got, thanks to their help I could get a genetic test and got to Know my subtype and my mutation! Now I just hope they would find a cure anytime soon!

Life isn't always easy but I always try to stay positive and be the Best I could be! :D

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