BUENOS DIAS, SOY UN NIÑO MUY ACTIVO CON ANOMALIA DE EBSTEIN. VIVO EN BOGOTÁ, Y HASTA EL MOMENTO NO HE TENIDO NINGÚN SINTOMA. ESTOY EN CHEQUEOS CADA 6 MESES.
SI TIENEN ALGÚN AMIGO, FAMILIAR O UDTED MISMO TIENE ANOM...
born with severe EA and no surgical intervention to date. Suffered stroke in 2012from uncloused PFO; Helex repair to prevent future strokes. Fortunate enough to have survived this long; daughter born in 2014 with same Ebstein severity (no surgery to ...
Echo at 20 weeks gestation showed EA. Did well at birth and as a baby. By 8 yo need ohs due to enlargement of RA and tiredness from regurgitation. Surgery at UVA unsuccessful. ☺️ 4 years later ohs at Children's in Boston. Cone and maz...
I lived for 46 years without knowing that I had Ebstein's Anomaly. When I was little my Dr heard a sound that he diagnosed as Mitral Valve Prolaspe. He put it in my chart but never ordered an echo to verify this thoughts. It wasnt until I had several...
3 people with Ebsteins Anomaly have taken the SF36 survey. Mean of Ebsteins Anomaly is 1340 points (37 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
