People with experience in Fabry disease give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Fabry disease. What are the possible difficulties in having a relationship?

▷ Is it easy to find a partner and/or maintain relationship when you have Fabry disease?

Stories of Fabry disease

FABRY DISEASE STORIES

VIEWS

BY

Was not diagnosed till my 3rd stroke at age 34. Now 38 years old total of 6 strokes. The last stroke was February 2, 2016. Was on the right side where the others have been on the left. I actually feel better than prior. My eye site is better as well ...

846

2/17/16, 11:23 PM by Troy

LIFE LONG

1980's- gastro issues/ burning hands and feet. Told females weren't affected so couldnt be Fabry's. Dad diagnosed in 1960's so I was tested at birth and always knew "carrier!" Dad had kidney/ strokes. Sister, 2 nephew and 1 niece with Fabrys. Hav...

830

2/17/16, 3:22 PM by Debs

NOAH'S STORY

Born and raised in Tokyo. I also have an American cidesin ship because my mother is American. I am a university student now. I get my treatment once in 2 weeks. Don't have much difficulty in Daly life but I can't exersis alot do to my Simpsons of h...

747

2/18/16, 2:41 AM by Noah

FABRY

I was diagnosed in 2014 and started ERT in April 2015 for fabry. It has signicantly affected my heart, which is enlarging. Hopefully treatments will arrest this and maybe even improve it. I am living a good life and am very grateful for the tre...

733

2/18/16, 9:29 AM by Carol Smith

RACHEL'S STORY

I am the only person in my family to have Fabrys. I was diagnosed by my optician. It's ice to have a name to this disease as I have lived with it since I was 5 years of age. I have a mutant gene, so Fabrys starts with me and ends with me. I'm under t...

Is it easy to find a partner and/or maintain relationship when you have Fabry disease?